Do you have questions or need help on being the best caregiver you can possibly be for someone you care for. Below is a listing of my favorite agencies to get your questions answered or learn more about caregiving resources available.
Caregiving Advocacy Organizations
American Hospital Association National organization that represents and serves all types of hospitals, health care networks, and their patients and communities. The American Hospital Association (AHA) is the national organization that represents and serves all types of hospitals, health care networks, and their patients and communities. Nearly 5,000 hospitals, health care systems, networks, other providers of care and 43,000 individual members come together to form the AHA.
American Public Health Association – The American Public Health Association (APHA) is the oldest and largest organization of public health professionals in the world, representing more than 50,000 members from over 50 occupations of public health. APHA champions the health of all people and all communities. We are the only organization that influences federal policy, has a nearly 150-year perspective and brings together members from all fields of public health.
National Clearinghouse on the Direct Care Workforce Provides reliable up-to-date information for people who are working to improve direct caregiving jobs. HCBS.org is the premier clearinghouse promoting the development and expansion of home and community- based services by gathering resources and tools for research, policy-making and program development into a one-stop online library.
National Private Duty Association – The National Private Duty Association (NPDA) is a non-profit national voice for organizations that provide private duty home care services. An advocate for services which benefit the consumers for whom they care: seniors, children, persons with disabilities, those with chronic health conditions and anyone whose quality of life can be improved by having a care worker help in their home.
Caregiving Support Organizations
Family Caregiver Alliance – Committed to caring for caregivers, resource site. For 40 years Family Caregiver Alliance (FCA) has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions.
Hospice Association of America – A national organization representing more than 2,800 hospices and thousands of
caregivers and volunteers who serve terminally ill patients and their families.
National Area Agencies on Aging The National Association of Area Agencies on Aging (n4a) is the umbrella organization for the 655 area agencies on aging (AAAs) and more than 230 Title VI Native American aging programs in the U.S. The fundamental mission is to provide services which make it possible for older individuals to remain in their home.
The National Association of Area Agencies on Aging’s primary mission is to build the capacity of our members so they can help older adults and people with disabilities live with dignity and choices in their homes and communities for as long as possible.
National Family Caregivers Association – Supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.
Caregiver Action Network (CAN)
is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Alzheimer’s Association -A national network of chapters, is the largest national voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease. Formed in 1980, the Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support, and research.
American Association for Respiratory Care – AARC is the only professional society for respiratory therapists in hospitals and with home care companies, managers of respiratory and cardiopulmonary services, and educators who provide respiratory care training.
American Cancer Society – The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
American Diabetes Association – The American Diabetes Association is the nation’s leading nonprofit health organization providing diabetes research, information, and advocacy.
American Heart Association – The American Heart Asso – Founded in 1904 to fight tuberculosis, the American Lung Association® today fights lung disease in all its forms, with special emphasis on asthma, tobacco control, and environmental health.
American Stroke Association – The division of the American Heart Association that’s solely focused on reducing
disability and death from stroke through research, education, fundraising, and advocacy.
Home Care Education & Resources
American Association for Long-Term Care Insurance – Latest and most relevant information including the national online directory of long-term care insurance professionals from the industry’s professional trade organization.
Founded in 1998, the Association is the nation’s leading independent, organization serving those who offer long-term care insurance and other planning solutions. Our members constitute the nation’s most knowledgeable and committed professionals along with leading LTC providers.
National Parkinson Foundation – The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.
National Alliance for Caregiving – Established in 1996, the National Alliance for Caregiving is a non-profit coalition of national organizations focusing on advancing family caregiving through research, innovation, and advocacy.
The Alliance conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues.
Legal & Medical Resources
American Association for Geriatric Psychiatry – Dedicated to promoting the mental health and well being of older people and improving the care of those with late-life mental disorders.
American Physical Therapy Association – The mission of the American Physical Therapy Association (APTA), the principal membership organization representing and promoting the profession of physical therapy, is to further the profession’s role in the prevention, diagnosis, and treatment of movement dysfunctions and the enhancement of the physical health and functional abilities of members of the public.
CMS-Centers for Medicare & Medicaid – Services US Dept of Health and Human Services website- includes resources for Medicare and Medicaid programs.
Elder Care Matters – Right at Home is a Member of the national Elder Care Matters Alliance. Your link to useful articles, interviews, resources, and information about a wide range of elder care matters. Plus, this is where you will find some of America’s “best & brightest” elder care experts who can help you plan for and deal with your family’s issues of aging.
FirstGov – Official US Government Website. Laws, regulations, and legislation related to senior care issues
Medicare – Official US Government website for people with Medicare
National Academy of Elder Law Attorneys – Provides information, education, networking and assistance to those who deal with the many specialized issues involved with elderly care legal services and people with special needs.
National Mental Health Association – The country’s oldest and largest nonprofit organization addressing all aspects of mental
health and mental illness. With more than 340 affiliates nationwide, NMHA works to improve the mental health of all Americans, especially the 54 million people with mental disorders, through advocacy, education, research, and service.
Senior Care Solutions, Inc. – As Long-Term Care Experts, we assist consumers, insurance agents, financial planners and other industry professionals. As Elder Care Consultants and Geriatric Care Managers, Senior Care Solutions, Inc. provides expert assistance and guidance for aging adults at every level of care.
Elder Care State Directory – Every state has an Aging Services Division dedicated to providing frail seniors with home and community-based services, so that they can continue living in their own homes, instead of having to enter a nursing home.
A wide range of state assistance programs are generally available to eligible seniors, including home health aides and skilled nursing care, home-delivered meals, help with household chores, transportation to shopping and medical appointments, as well as counseling, advocacy, and legal aid.
In addition to these programs that help senior citizens directly, many states also offer caregiver assistance programs that provide family caregivers with information, counseling, and respite services.
Senior Health & Information
AARP – A nonprofit membership organization of persons 50 and older dedicated to addressing their needs and interests.
Administration on Aging – Learn more about the Older Americans Act, the federal legislation establishing the AoA and authorizing a range of programs that offer services and opportunities for older Americans and their caregivers.
National Institute of aging – NIA, one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. NIA is the primary Federal agency supporting and conducting Alzheimer’s disease research.